Feminism, Backlash, and Sweetening The Pill

Birth Control, books, Coming off the pill

It’s been more than 20 years since Susan Faludi first published Backlash (with the provocative subtitle, The Undeclared War Against American Women), her thorough documentation of the ways women and feminism were under attack in the U.S. The War Against Women has been now been openly declared in American politics, and there is a backlash among women in online feminism.

I’m referring to discussions of hormonal birth control; specifically, how and with whom we can criticize the birth control pill. Before she joined the re:Cycling team, Holly Grigg-Spall wrote a guest post for us titled, Why Can’t We Criticize the Pill?  At the time, the title may have seemed a little overwrought, but now that her book criticizing the pill has reached the market and been reviewed in several online publications (including by some reviewers who refused to even read it), the question is more than apt. Lindsay Beyerstein’s review for Slate prompted some readers to start a petition asking the publisher to cease publication. Amanda Marcotte has written two posts on her blog slamming the book without reading it, and refused offers of a free copy so that she could respond accurately. Dr. Jen Gunter is also uninterested in reading it, labeling the book “that atrocious pill book” on Twitter and suspecting “a pro-life agenda”.

The criticisms of the book are many and inconsistent: (1) an assertion that Grigg-Spall claims the pill is bad because it is not ‘natural’,  (2) since the pill was bad for Grgg-Spall, no one should take it; (3) the pill is sexist and therefore dangerous; (4) the pill is anti-feminist; and furthermore, (5) Holly advances all of these claims in service of a anti-feminist, anti-woman, anti-choice, pro-life, Christian right-wing agenda. That last one is particularly galling, as every time she speaks or writes about these issues, Holly prefaces her talk or mentions in her writing that she is atheist, feminist, and pro-choice. (She often also mentions that she’s British, and was raised with a very different health care system than those of us in the U.S., and thus held different assumptions about access.)

All of these criticisms are either factually incorrect, or exaggerated or deliberate misinterpretations of Holly’s actual arguments. For instance, while she does question what ‘natural’ cycles would be like if women didn’t take the pill, she does not assert that pill = unnatural = bad. Nor does she advocate banning or restricting the pill. She does locate the pill in a complex matrix of capitalist and patriarchal social structures that do not benefit women, which is not exactly the same as saying “the pill is sexist”.

As a feminist, a scholar, and as a reader of books, I’m both fascinated and frustrated by the criticism Sweetening the Pill has received. I’m appalled that reviewers would write and publish reviews completely panning a book they haven’t read, and then refuse to read it. As a feminist, I’m frustrated by apparent efforts to shut down dissent. The pill has never been more politicized in American life, and as I’ve asserted elsewhere, we cannot be so focused on preserving access that we’re willing to ignore questions of safety. Furthermore, it is not anti-feminist to disagree with one another. Feminism has a long history of proliferating and becoming more powerful by listening to dissent from within. Anyone remember the “Lavender Menace“? The emergence of intersectionality? As a commenter on one of the hack pieces eloquently put it,

The feminist critique of reproductive technology (including the pill’s discontents) are well established going back before the existence of the pill itself as debates with Sanger and colleagues. I’m sure this is widely taught in the Women’s Studies programmes you mention, it was to us even in A-level sociology.

I just don’t understand why you are pretending this is a new thing or that anyone taking these positions is a non-feminist. Are genuinely unaware of the history of your own movement or is this a crude rhetorical move against people you don’t agree with? Feminists (Seaman and Wolfson) provided critical testimony in the 1970 Senate Hearings, this is not some sort of obscure or secret fact, Wolfson’s outburst as to the constitution of the hearings and why drug companies were better represented than women is surely famous?

It seems to be the case you want to retro-actively kick Barbara Seaman out of feminism. You know, the woman that Gloria Steinem said was the prophet of the women’s health movement… with respect I don’t think you have the power and you don’t have an argument.

Feminism has always supported counter-intuitive critiques given that problems are multi-valenced. While Sanger held that reproductive control was an essential pre-condition of liberation, “who controls the control”, why and how are far more provocative questions.

Agree or disagree with Sweetening the Pill, or any other book, but read it for yourself, and form an opinion based on what the book actually says — not what a reviewer says or a 140-character criticism on Twitter suspects it might say. And think very carefully, and perhaps read it again, before you decide that it’s not feminism just because it doesn’t match exactly your feminism.

Yaz and Yasmin Back in the Spotlight

Birth Control, Coming off the pill, Pharmaceutical

Guest Post by Holly Grigg-Spall, Sweetening the Pill

Last year the FDA made the decision to keep the birth control pills Yaz, Yasmin, and Beyaz on the market despite controversy over corporate corruption of the review process.These drugs are back in the spotlight.

The French health minister has called for doctors to stop writing prescriptions, 2,000 lawsuits against Bayer launched in Canada last month, and Marie Claire Australia dedicated five pages to an in-depth feature about the side effects, instigating an investigation by the country’s top current affairs show Today Tonight.

Bayer has gone about settling the 13,000 lawsuits in the US out of court, likely with the hope of keeping the details of confidential files regarding marketing techniques and research out of the public eye. Unperturbed by mounting reports from women of the myriad health issues caused by their products, the company launched Yaz Flex in Australia at the end of 2012. The first oral contraceptive on the Australian market presented as being for the purpose of preventing periods, Yaz Flex comes in a digital dispenser that records how many pills have been taken and alerts the user when she’s missed a dose. There are enough tablets to allow for just three breaks a year. In the US in April the FDA, equally unperturbed, ruled that pharmaceutical company Activis can start selling generic versions of Yaz, providing a low-cost version of what has been the most expensive oral contraceptive of recent years.

The feature in Marie Claire Australia generated 300+ comments on the magazine and television show’s Facebook pages. Many of the commenters were women who had developed blood clots when taking these brands. Some had made the connection at the time and others made the link only as a result of the coverage after months or years of not knowing why they had endured the injuries. Some of the women were presently experiencing the symptoms of a blood clot mentioned in the show and made the decision to stop taking the pill as they typed.

The piece was written by a long-time member of the Yaz and Yasmin Survivors forum and balances interviews with women who suffered the serious physical side effects with those who have been victim to the serious psychological side effects. I’m among those who experienced a long list of negative physical and psychological effects when taking Yasmin for more than two years and it was this forum that prompted me to stop taking it.

Monash University in Australia is one of the few facilities to have undertaken research into the correlation between birth control pills and depression. Professor Jayashri Kulkarni found that women on the pill were twice as likely to experience depression, anxiety, and mental numbness (known as anhedonia). The Yale Daily News reports that in the wake of her research receiving a little media attention Dr Kulkarni received more than 300 emails from women “clearly describing when they went off the pill that they felt subjectively more happy. The anhedonia, for example, disappeared, the irritability disappeared, the sense of poor self esteem disappeared”.

She is now focusing her attention on researching what she believes to be the particular psychological impact of the Yaz brands, those pills containing the synthetic progesterone drospirenone and low-dose synthetic estrogen.

Although there is no direct-to-consumer advertising in Australia these brands of pill gained popularity there just as they did in Europe and Canada. It is interesting to note that Marie Claire US ran an article in 2011 titled ‘The New Super Pill’ that named Yaz and Yasmin as the latest, greatest “no-acne, no-bloat and pms-be-gone” pills that also allow you to “shorten your period”. The pages of magazines such as Marie Claire in the US are usually scattered with adverts for Yaz and Yasmin, the NuvaRing, Nexplanon impant, and Mirena IUD. The print and television commercials often play on the same insecurities reflected and bolstered by the majority of the women’s magazine articles.

Articles with headlines like that of the Marie Claire Australia piece, “Bitter Pills: The Birth Control With Deadly Side Effects”, are usually accused of scare-mongering women off the pill unnecessarily despite the fact that reactions suggest they might well be saving lives. Generally women who decide they don’t want to take one brand are presented with another — and how many women know Yaz Flex, Yaz, Yasmin and Beyaz are 99% similar in composition and won’t just be shifted among the four? Judging from the comments responding to the piece, women who decide they are done with birth control pills are likely to be offered a Mirena IUD, implant, or Depo shot, all of which hold their own set of deadly and life-shattering side effects.

Women commented on the Facebook pages that they had made an appointment with their doctor only to be told not to worry and keep on taking their pills. Yet more remarked on their anxiety over stopping taking them as the article described the difficulties women experienced after they came off. Among women sharing doubts over whether the implant or shot should be their next choice, one woman asked:

“What other safer alternatives are there to birth control pills then?”

These articles don’t tend to go into the non-hormonal alternatives for contraception and cycle health that could support women in their choice not to take these drugs, and leave those scared of side effects to struggle along feeling trapped between pharmaceuticals and unwanted pregnancy, or on pharmaceuticals and not looking like the models in the magazines. That support needs to be out there and easy to find, or we will continue to see messages like this, sent out into the silence:

“I have been on Yaz for 3 months and just recently got switched to Yaz Flex yesterday so that it’s easier for me to remember takin it on time etc. by my doctor. I told her about what’s been happening in the last month or so, and she just gave me a cream for rashes etc. BUT I am seriously concerned as to if what I am experiencing is normal or not. I may be over reacting, I was put on this pill to regulate and lighten my period and also for my acne, it has helped a lot, but in the last month or so I have been experiencing an extremely itchy face, I have been finding it hard at times to breath and I’m very shortened in breath, it’s starting to scare me a lot. My heartbeat is irregular and I feel extremely light headed. I have been also experiencing horrifying migraines and headaches. I’m only 15 I may just need more understanding to what is happening if it is normal, somehow I feel it’s not please help :,(“

Footloose and Pharmaceutical-Free?

Birth Control, DIY, Sex

Guest Post by Holly Grigg-Spall, Sweetening the Pill

At the West Coast Catalyst Convention for sex-positive sex-educators I was listening to a talk on definitions of sexual health when the birth control pill was brought up. I’d spent much of the event feeling desperately vanilla and so was pleased to be discussing something other than strap-ons and lube. The most popular forms of contraception – the hormonal kind – had been notably absent from all discussion that weekend.

Toys in Babeland window display, Photo by Joaquin Uy // CC 2.0

The speaker told the group that the pill is the leading cause of low libido and pelvic pain. She explained that studies had suggested the impact on libido could be permanent. The reaction of the audience was immediate and urgent – questions were fired out and it became clear that this information was news to most. A number of audience members seemed genuinely shocked. “What’s the science behind that?” one woman asked, but the speaker said she didn’t know.

Although the convention’s attendees had an intimidating level of knowledge when it came to sexual technique and sex toys, I discovered that once I mentioned I was there to develop a book and a documentary on hormonal contraceptives, many repeated the usual disinformation about birth control methods.

The speaker was right – the birth control pill is a leading cause of lowered sexual desire and pelvic pain. It’s also known to cause loss of lubrication, vaginitis, and vulvodynia. Other hormonal contraceptives such as the Depo Provera injection, implant, ring and Mirena IUD have been seen to have similar consequences. In fact, Dr. Andrew Goldstein, director of the U.S.-based Centers for Vulvovaginal Disorders and one of the foremost vulvodynia experts in North America, blames an increase in complaints of this kind on third generation low-dose pills.

The study the speaker referred to was conducted by Dr. Claudia Panzer of Boston University and it did suggest some women may see a permanent effect on their testosterone levels, and so their level of desire. There have also been studies on these methods impact on frequency and intensity of orgasm, showing both to be decreased. Not to mention the 50% of women who will experience general negative mood effects that surely impact on their interest in sex. Many, many other studies have shown a clear negative effect on libido whilst using hormonal contraceptives. So many that it’s become something of a joke to roll eyes over the “irony” of prescribing a pill for pregnancy prevention that stops you wanting to have sex anyway.

At a convention dedicated to the celebration of sexual pleasure, I was surprised to see this information received with such confusion. A sex-positive attitude is becoming synonymous with “set it and forget it” long acting hormonal methods of contraception. But it struck me that sex-positive advocates should be the biggest fans of fertility awareness methods. Here’s why:

“Lives will be saved” – the FDA decision not to ban Bayer’s birth control pill

Birth Control, Law/Legal, New Research, Pharmaceutical

Guest Post by Holly Grigg-Spall

 

Photo by Monik Markus // CC 2.0

How many of us read the inserts included in a packet of pills? How many decide not to take the pills on the basis of the information enclosed?  The rapidly reeled-off list of side effects stated at the end of a televised advert for a new drug has more comedic value than serious consequence to most. If we do have doubts, many of us will rely on the reassurance of a doctor, and then take the pill anyway.

I recently wrote a piece for Ms. Magazine Blog outlining the FDA reappraisal of top-selling oral contraceptives Yaz and Yasmin. It was discovered that drugs such as these containing drospirenone held a significantly higher risk of causing blood clots. Research by the FDA and other bodies suggested this conclusion was definite, while research funded by the pharmaceutical company behind these billion-dollar products, Bayer, suggested the opposite conclusion to be true: that there was no increased risk evident. A team of experts, some of which had financial ties to the company, voted against having the pills taken off the market when presented with the question of whether the risks of taking these pills outweighed the benefits.

Bayer is facing 11,300 lawsuits from women who have been seriously injured and family members of women who have died after taking one of the company’s bestselling hormonal contraceptives. They have settled the first 500 addressed with a total of $110 million in payouts. When discussing this process with a lawyer representing many of the women I was told that Bayer would do anything to avoid a trial wherein the full spectrum of their marketing strategies would be revealed.

The FDA came to the decision to add into the insert included with these drugs a statement of the discovery of “conflicting” research that suggested the pills had a higher risk of causing blood clots  (up to three times higher) – acknowledging the discrepancy of the research funded by Bayer and giving it equal standing as that performed by other bodies including the FDA itself.

Prior to this decision being announced a number of women’s health groups got together to write a letter to the FDA asking that they look again at the question put to the board of experts. They argued that the correct comparison for the board to consider would be between drospirenone-containing contraceptives and other oral contraceptives, and not between Bayer’s drugs and unwanted pregnancy. In the final sentence, they remarked that they believed that “lives will be saved” if the pills were no longer on the market. They met with the FDA and one representative asked that the FDA strongly reassess its acceptance of Bayer-funded research. Another asked that the drugs no longer be prescribed and that the FDA “get back to the arc of history and progress that protects women while supporting their contraceptive needs.”

The new labeling will state the “conflicting” findings and advise that women speak to their doctor if concerned. The official statement on this decision, relayed through the media coverage, reminded women that when compared to pregnancy the risk of development of a blood clot was insignificant. They also asked that women currently taking the drugs not stop doing so. Despite the FDA studies suggesting the blood clot risk is particularly high for women under 30, the statement compounded the understanding that the issue is only relevant to those over 35,  those overweight, those that smoke, and those with relevant medical history.

Is this additional text in an insert enough? Cynthia Pearson of the National Women’s Health Network has given an unqualified no as her response to the decision.  If no is the answer, then what needs to happen next? At this time I’ve seen no coverage outside of news reports that has shown the response of the wider feminist, or just female, community.

When I heard that the FDA was asking for a comparison between pregnancy risks and the risks of Yaz and Yasmin, and that the women’s health groups were calling for, in their letter to the FDA, a comparison between these oral contraceptives and other brands not containing drospirenone, I immediately wanted to know why the comparison was not between using these pills and not using them — as in using other forms of non-hormonal contraception with similar effectiveness. This would produce the biggest gap, and put the statistics in starker relief.

There is too much dependent on the FDA not acknowledging the efficacy of non-hormonal contraceptives or admitting that research funded by the pharmaceutical company producing the drug is not reliable. These were for some years the most popular oral contraceptives. It is important that it is believed that there truly is an “arc of history and progress that protects women.”

Even the women’s health group representatives appear to understand this as a blip in an other uninterrupted history of outstanding service. To my mind, such behavior by the FDA should raise some serious suspicions of their motivating force. They advise that women should discuss this with their doctors – doctors who probably know less than I do, due to time constraints, inclination, as well as doctors that could well be directly or indirectly benefitting from backing Bayer.

If it’s taken this long to get a tentative admission of the blood clot risk, what do we not know about the other side effects of these pills? What were the benefits, outside of preventing pregnancy, of Yaz and Yasmin that the FDA saw as so important to women?

The reaction of the women’s health groups suggests an attempt to work within the system, rather than against it.  Does the FDA see itself as protecting the freedom of the millions of women who decided to take Bayer’s oral contraceptives, the millions that made it a bestseller? When a corporation can and will do anything to sell its product in ways that even the most cynical consumer would find shocking can we uphold the notion of informed consent?

We live in a very different time to 1970 when the result of the Nelson Pill Hearings was the inclusion of an insert in birth control pill packets. Then, the other noise of advertising – both overt and hidden – was not loud enough to drown out the message. We are now far happier with corporations telling us what to do than we are with being dictated to by the government. Consumer-driven choice keeps women on the pill – with doctors swapping them between the many brands as side effects appear. Laura Wershler and I put together a guide to a birth control rebellion. We live with a culture that stresses there is no alternative – to the pill or the system that supports it.

To quote a recent New Yorker piece by Margaret Talbot, by the way of Karl Marx, perhaps we must admit that – “Women make their own circumstances but not under circumstances of their own making” – and work from there.